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Thursday, August 26, 2010

1p36 Deletion Syndrome Conference in SLC Utah

In July we were able to attend and help plan for the 4th Annual 1p36 Conference. Luckily it was here in Utah so we could finally go. This year was our first one. It was really nice to be able to meet other families and to get the know the other kids. They are all so sweet and little angels.

I liked what Rachel Coleman from 'Signing Time' said "It's amazing to think about all the people I would know if I didn't have a deaf daughter" It's so true for all us 1p36 families. We wouldn't know any of you if Shay didn't have her syndrome. I am thankful we live in these days that I can communicate with other Mom's and to be able to meet so many other families who know what we are going through. It is was so amazing and a huge blessing in my life! Here a few pictures to remember the weekend by....Shay and Sammie


Shay's Speech and Occupation Therapist's were able
to come and help out. Love them!!!
Getting ready to go to the Discovery Gateway MuseumAt the Children's Museum Shay, Joseph,
Sammie, Callie, and TaylorWe took a few people out to Antelope Island to see the Salt Lake
Shay and her friend Abby, they are only 1 day apart

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