1p36 Deletion Syndrome Conference in SLC Utah

In July we were able to attend and help plan for the 4th Annual 1p36 Conference. Luckily it was here in Utah so we could finally go. This year was our first one. It was really nice to be able to meet other families and to get the know the other kids. They are all so sweet and little angels.

I liked what Rachel Coleman from 'Signing Time' said "It's amazing to think about all the people I would know if I didn't have a deaf daughter" It's so true for all us 1p36 families. We wouldn't know any of you if Shay didn't have her syndrome. I am thankful we live in these days that I can communicate with other Mom's and to be able to meet so many other families who know what we are going through. It is was so amazing and a huge blessing in my life! Here a few pictures to remember the weekend by....Shay and Sammie

Shay's Speech and Occupation Therapist's were able
to come and help out. Love them!!!

Getting ready to go to the Discovery Gateway MuseumAt the Children's Museum Shay, Joseph,
Sammie, Callie, and TaylorWe took a few people out to Antelope Island to see the Salt Lake
Shay and her friend Abby, they are only 1 day apart

Another trip to Vegas!

We decided to take a break from life and go down to Las Vegas to stay with John's Dad and family. We had a great time with them, and the kids really enjoyed their Uncle Wyatt. We mostly just played in the water, it was too hot to even go to the park in at 9 in the morning. It was a blast and well worth the drive.(At the park at 9am)

(Those goggles look a little tight)
(At the water park with Uncle Wyatt)
(Shay loved this fountain I think more than me)
(My beauty Shay)

What are Sisters for????

Roxy has been such a big help to Shay in the past couple years. She has really come to love her and teach help me her all the time. She teaches her to count and teaches her letters. When they do play good together, she teaches her to pretend play. Roxy is an excellent role model for Shay! Shay is a lucky girl to have such a smart, almost always kind sister. :) We love her too!!! SO MUCH!!!

A few pictures of Shay & Roxy over the years:

so PROUD!!! & Easter

I am so proud of this little girl. She has come so far it's amazing, she always surprises and amazes me. The little things are the big things for Shay. Like the other day how she wanted to go home and she told me "I want to go home!" I didn't even care that she was complaining because I was so excited she said "to" in her sentence. This was a complete sentence for Shay and it was awesome!! It's little things like this that make me a proud Mama to my little Shay Shay.

EASTER!!!!!
It was a good day and weekend. Cold by Fun!!

I can finally pull Shay's hair up in the back,
BARELY! But still, yeah!!!

At the rodeo...

My friend Karen invited us to the rodeo in Ogden on Friday. It was the girls first rodeo! We had a good time eating junk and watching the show. (Enjoying her cotton candy and sprite)

Shay was a little overwhelmed because it was loud and a lot of people. But she still had a great time! When we got in the car to go home I asked the girls if they had fun and what was their favorite part. They both told me "the horses and sheeps" were their favorite. :) It was nice to get out on a Friday night for once and thank you Karen for the invite and for the free tickets! YEEEEHAW!

(Karen and her little one Logan)

(Shay and her good bud Jaxon)

(Only at the rodeo)

(Shay and her awesome Mama :)! )

WORD GIRL has been arrested!!

Lately Shay has been wanting to watch this cartoon on PBS Kids called WordGirl. She asks for it often. So today I was on the computer while Roxy and Shay were having quiet time, and I hear Shay start to cry really hard. I knew this was serious because I just know I'm her Mom. So she comes to me with tons of tears in her eyes and can't even tell me what is wrong. So I rewond the show (thank you DVR I love you!) and saw that WordGirl had been arrested for some reason. Shay was devisated! She was still crying holding on to me tight and I asked her if she wanted to watch something else. Of course she said yes and she said "ya, that will make me feel better". She is such a innocent little girl and thinks that everything on TV is real! She cries at monsters on Scooby Doo, but she loves Scooby! She is my little sweet heart and I love being her "Mama"!